Advocacy ToolsClick below to download the latest version of the SMA NBS Alliance materialsEuropean Alliance for Newborn Screening in SMA Whitepaper – Spinal muscular atrophy: screen at birth, save lives (version 2, 25 November 2021) Atrofia muscular espinhal: Rastrear ao nascer, pode salvar vidas (em português brasileiro) Atrofia muscular espinal: el cribado al nacer salva vidas (en español) Atrofie musculară spinală: Screeningul la naștere salvează vieți (în română) Call to Action on Newborn Screening for SMA Poster on the SMA NBS Alliance Flyer on the SMA NBS Alliance Affiche en français Other important tools and resources EURORDIS’ Key Principles for Newborn Screening Supporting Patient Advocacy for Newborn Screening Toolkit A landscape assessment of newborn screening (NBS) in Europe by Charles River Associates (2021) Achieving Equity and Innovation in Newborn Screening across Europe Screen4Rare EU level Call to Action on Newborn Screening for Rare Diseases Neonatal Screening in Europe Revisited: An ISNS Perspective on the Current State and Developments Since 2010 Banner photo by Christopher Hargoues / AFM-Téléthon
